Meet Emily

Child's Diagnosis: CoArctation of Aorta, Bicuspid Aortic Valve 

Has Kerrington’s Heart impacted your journey? If so, how?: 

Kerrington’s Heart, Inc. was a resource shared by Emily’s cardiology office at the time of her CHD diagnosis.  I reached out to KHI and they have been a support to our whole family throughout our entire heart journey – diagnosis, surgery, recovery and everyday life.  KHI has also provided our family with education, care packages, and opportunities to connect to other CHD families through Mom’s Meetings and fun, family events throughout the year.  Having a child with heart issues is a lonely and scary experience, and I am forever grateful for all of the support Kerrington’s Heart has generously provided.      

What’s one thing you wish you’d been told at the beginning of your journey?: 

I’m not sure if there was anything specific that we wished we would have been told at the time of Emily’s diagnosis.  That said, I would encourage new families to reach out to available resources like Kerrington’s Heart, Inc. even if that is out of your comfort zone.  One of our biggest blessings has been not having to walk this journey alone.   

Please share a little bit about your story: 

Emily was 8-years-old when her CHDs were discovered.  She’s had one open heart surgery at this point and is healthy and thriving.  While she has some physical restrictions, she participates in dance, horseback riding and swimming.  She loves participating in the Wild Hearts Fun Run 5K, Cookies with Santa and the Camp for Courageous Kids each year all made possible by Kerrington’s Heart.   She is a true warrior.