Meet Alexis

Child’s Diagnosis: Williams Syndrome (May is awareness month)

What’s one thing I wish I was told at the beginning of our journey?:

It’s simple, that it will all be ok.   

Please share a little bit about your story:

Lexi is 11 years old and was diagnosed with Williams Syndrome before she was a year old. She had open heart surgery when she was 13 months old. She will need another more extensive surgery very soon. Williams Syndrome is a genetic disorder present at birth and only affects 1 in 10,000 people. People like Lexi are very outgoing and friendly, sometimes too friendly. They are probably the nicest people you will ever meet. Lexi loves life. She loves her family and her animals. She loves to go shopping, eat at restaurants and go to church. Anybody that knows her knows she absolutely loves pizza and McDonald's. Lexi is involved in Special Olympics which she looks forward to every year. Lexi is always happy and smiling. Everywhere we go she has to ask somebody what their name is and ask them how they are doing. She knows no hate at all. Lexi has taught me a lot in the last 11 years and she has definitely made me a better person. Lexi is very special to me and everybody that knows her. If we could all have a touch of WS the world would be a much better place.