Meet A'Mijah

Child's Diagnosis: Transposition of the great arteries (TGA). Pulmonary Stenosis

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They were a big help in the beginning of our journey.

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A’Mijah was born in Madison County. I stayed super sick and in a lot of pain when pregnant with her. When she was born, and her cord was cut she immediately turned blue. There was an intern in the room during delivery via C-section who stated she had a heart defect. She was rushed to UK and once I came out of recovery, they rushed me to UK to be with her. She had her 1st open heart surgery at 6 days old to do the arterial switch to fix her heart. The night of her 8th day of life, A’Mijah had a blood clot form and caused tachycardia. They then had to re-open her and remove the blood clot that had made its way to her lung. When she returned to the room, they left her chest open (in case of any other emergencies.) I was told to kiss her goodbye. (They didn’t expect her to make it thru the night) Once she came back up to her own room, she was then on ECMO (blood transfusion) They closed her back up on the 11th day. She then had to have 2 more open heart surgeries since then. One at the age of 1 and one at the age of 4. She has been very stable since the last operation and now we are doing cath procedures yearly if needed to help with the pulmonary stenosis. She is my tough firecracker!!!