Meet Braylynn

Child's Diagnosis: Tetralogy of Fallot

Has Kerrington’s Heart impacted your journey? If so, how?:

Yes, they have made a huge impact in our journey. The chats, information, stories, prayers, and even the lovely cookies they sent (lol). We are forever grateful for Kerrington’s Heart and for Christy.

What’s one thing you wish you’d been told at the beginning of your journey?:

The one thing that we wish we was told at the beginning of this was we wish we had known about his heart defect before he was born so we would had time to educate ourselves and been more prepared.

Please share a little bit about your story:

On August 11,2019 Braylynn entered this world at 8 am weighing 2 pounds 14 ounces, born at 30 weeks. We didn’t know about his heart defect till 2 days after he was born. That’s when they diagnosed him with tetralogy of Fallot. He was already having a little difficulty with his lungs. It took a couple of days before it all sunk in that our child had congenital heart disease. On September 29,2019 they called me over from the Ronald McDonald house telling me to get to my child’s beside. His oxygen was going down and he was having “blue spells” right then they told us we would be transferred to Cincinnati Children’s Hospital. We get to Cincinnati, scared worried exhausted, to have the doctors tell us they was going to put a stint in his pulmonary value. While there was also battling other complications and a UTI that he had developed. They did the balloon and thinking that it would work till he would have his repair. That same night as he had the balloon done they called at 1:30 am to come back over because they either going to do a stint or full repair. When got there it was not what I wanted to see. The whole room filled with doctors, medication all laid out on the table in case they needed it and the look of worry  in everyone’s eyes. My heart was broken.  The Stint was a success. On Feb 24 2020 he had his first heart repair. Since then he has gained weight and is full of energy. We go to heart Dr. every 6 months to a year to check on heart because he still has a tiny hole and his pulmonary valve won’t grow with him so they check that and every time he hits a growth spurt he will have to have a repair to make it grow with him,. And he has a severe leakage in pulmonary value. If it wasn’t for God, prayers, our family, friends and Kerrington’s Heart organization we wouldn’t had made it thru all this.