Meet Kyle
Child's Diagnosis: Acute rejection of cardiac transplant, pain of left lower extremity, Pulmonary Hypertension, Occlusion of Artery, long term current use of immunosuppressive drug, aberrant right subclavian artery, S/P Orthotopic Heart Transplant, Shone’s Complex Syndrome
Has Kerrington’s Heart impacted your journey? If so, how?:
The amount of support that I have had by Kerrington's heart has been unbelievable. They have made our heart Journey more bearable. Not only have they helped me financially but emotionally as well. They have followed us from the beginning and has continued, they are such a tremendous help and we our truly grateful.
What’s one thing you wish you’d been told at the beginning of your journey?:
How emotionally draining it would be.
Please share a little bit about your story:
Our Journey began when my baby boy was 13 days Old and barely responsive. Kyle was diagnosed with Shone's complex at 19 days old, after he had his first open heart surgery. As he got older his heart started to get worse and he had to have several open heart surgeries, pacemakers and that eventually lead to him needing a heart transplant. He was listed for his heart transplant in February 2012 and had his heart transplant on December 4 through the fifth of 2012.
Meet Joshua
Child's Diagnosis: At birth he had Truncus Arteriosus, AV Canal Defect, Cleft Lip and Palate...he then underwent surgery at 1 week old to have PV bands placed...at 4.5 months old he had a Heart Transplant on 04/18/15.
Has Kerrington’s Heart impacted your journey? If so, how?:
Yes, they have been a constant support system and always sending inspiration or way in times of stress and worry...they have also helped us during the holidays by having our family be adopted so my children were able to receive gifts at Christmas...they have also helped out financially when we were struggling by giving gas or grocery cards.
What’s one thing you wish you’d been told at the beginning of your journey?:
That my life was never going to be the same and that there is always someone out there to help you just have to know whom to ask...also that a complex kiddo requires a lot more patience and the ability to learn on your feet and just go with the flow...
Please share a little bit about your story:
We found out during the anatomy scan about our son's initial situation and we knew then things would be challenging going forward but we never expected things to be as crazy as they are...we anticipated routine repairs and labs as he grew...we never expected cardiac arrest, transplant, tracheostomy, feeding tubes and other medical conditions...we got more than we bargained for but I never regret fighting for my little man...he is a true miracle and makes me a better stronger person that I ever thought I could be.