Meet Lincoln

Child's Diagnosis: Hypoplastic Left Heart Syndrome

Has Kerrington’s Heart impacted your journey? If so, how?: Having the relationships that I've formed from meeting other heart moms, as well as a medical resource for experienced parents of these children, and the financial support often given has made our journey much easier to navigate. I have never felt alone, and always have someone who checks in on us or that I can contact if anything is needed. Before Lincoln was born, I would have never known that I would have needed this much guidance, so I am so very thankful that they were there from the beginning to see us along every step of the way!

What’s one thing you wish you’d been told at the beginning of your journey?: You think it takes a village to raise one child...try raising a special needs child! They have truly been the support system I never would have thought I'd need, and if I must be a member of such a somewhat unfortunate, unexpected 'club', I'm glad I'm in good company with all these heart mommas and families! There is nothing I regret about being accepted into the world of CHD, Lincoln makes it all so easily worthwhile!

Please share a little bit about your story: Lincoln Clay Shockey was born with Hypoplastic Left Heart Syndrome in April of 2015, and has been stealing hearts since the moment we found out his little heart was broken. Diagnosed prenatally at 24 weeks, he has undergone a series of surgical and medical procedures, including the 3 stage open-heart repair known as the Norwood, Glenn, and Fontan surgeries to treat his condition, all by the age of 2. He is spunky, super high energy, very empathetic and loving, and has yet to meet a stranger! Born to 4 older brothers, he was made to be a warrior, and enjoys crafts, playing outside, music, and of course, all things B-O-Y! Given that his medical condition is treated in Philadelphia, he was born a traveler and tourist, and visits his 'extended family' in Philly at least once a year. Most days Lincoln is playing, learning, and interacting like any other 5 year old boy, and aside from his initial condition, he has had only minor delays and minimal medical intervention since the completion of his surgical treatment. He is the center of attention and the rock of our family...even though he is little, he is mighty strong! There is nothing that can stop our little hero, and we cannot wait to see what goodness he brings to this world!