Child's Diagnosis: TGA, DORV, ASD, VSD, Single Coronary Artery, Pulmonary Stenosis and Dextrocardia
Has Kerrington’s Heart impacted your journey? If so, how?: Kerrington’s Heart has defiantly impacted our journey. They gave me information on CHD. Offered a kind word and someone to talk to when I felt inhale no where to turn. They gave me meal tickets for my husband as I as we stayed at the hospital.
What’s one word you would use to describe your journey and why?: Overwrought. I was so worried over my child health, if the doctors and surgeons were going to make the right choice for him, even if I would have the knowledge to care for him after surgery.
Please share a little bit about your story: My son Connor was born on April 19th 2011. It was the scariest day of my life. He has had 1 open chest surgery, 1 open heart and been in heart failure besides all the hospital stays, cardiac caths, ekg, echocardiogram and x-rays. Things been a terrified journey for our family. Connor is soon going to be 8 yrs old and looking for another surgery in the near future however he is stable for now. With our love for each other and the help from God to lead us through another day we are thankful. Connor is my world and I am his and together we can concur the trials.