First Steps – Early intervention program serving children from birth to age three years old who have a developmental delay or a physical or mental condition that may cause a delay in development. Services include, but not limited to, evaluation of the child’s development, home visits, and an individual family services plan (IFSP). For more information contact the First Steps Program at (800) 442-0087 or visit .

Accessible Respite Care – Consists of short term and temporary care to families with members who have disabilities, so that the caregivers and other family members can take a break from their daily routine of care giving.

The Kidz Club – A medical daycare for those children unable to attend a typical daycare because of medical conditions who require daily nursing care and medical supervision. For more information visit .

Icing Smiles – Provides custom celebration cakes and other treats to families impacted by the critical illness of a child. For more information visit .

The Center for Courageous Kids (CCK) - A world-class medical camp, in Scottsville Kentucky, at no cost to families designed specifically for children living with medical challenges. CCK encompasses an on-site medical center with helipad, indoor aquatic complex, equestrian riding area, bowling alley, gymnasium, climbing wall, boating, fishing, theater, four camper lodges and so much more. Offering weekend retreats for ill children and families and summer camping sessions designed especially for courageous kids. For more information visit


For some, the insurance battle has been one of the hardest battles of their journey with Congenital Heart Disease.  We hope that these resources provide you some assistance in your journey.

Insure Kids Now – Learn about programs offered in your state for more information visit or call (877) KIDS-NOW.

KyHealth Choices (otherwise known as Kentucky Medicaid) – Health coverage for children, families, pregnant women, the elderly, and people with disabilities which meet the eligibility requirements.  For more information visit the Kentucky State Medicaid Web site at or call (800) 635-2570.

Kentucky Children’s Health Insurance Program (KCHIP) – Free or low-cost health insurance for children younger than 19 without health insurance. KCHIP eligibility is determined using the Modified Adjusted Gross income and family size based on the tax filing unit of the household. For more information visit the K-CHIP website at .

Consumer Directed Option (CDO) – Allows waiver eligible members to choose a provider for their non-medical waiver services, allowing them greater freedom of choice, flexibility, and Resources for Children with Congenital Heart Disease control over their supports and services. Members can choose to direct all or some of their non- medical waiver services. For more information visit or call (877) 293-7447.

Supplemental Security Income (SSI) – A Federal Income supplement program funded by general tax revenues (not Social Security taxes).   It is designed to help aged, blind, and disabled people, who have little or no income by providing money to meet basic needs for food, clothing, and shelter. For more information visit or call (800) 772-1213.



10 toes, 10 finders, healthy heart?

This is a great resource to raise awareness of the importance of asking these additional questions during your 20 week checkup.


Did you know? CHD Fact Sheet