Kerrington’s Heart is dedicated to the education, support, and encouragement of Kentucky children with heart defects, their families, and caregivers.
We strive to assist patients and families through each step in their journey of dealing with Congenital Heart Defects (CHD). We offer comfort bags, certificates of bravery, educational support and financial assistance to families in need of meals, fuel and lodging.
We offer a variety of craft activities and hospital room decorations to further encourage the children during their stay at the hospital.
Our Heart Moms Connect meetings are offered quarterly in Lexington Kentucky and provide an outlet for CHD mothers to connect with one another.
We provide numerous events throughout the year to bring Kentucky families together, creating a support system of life long friends while also giving CHD kids the ability to have “normal” childhood experiences such as Cookies with Santa and our Family Weekend Camp.
We are also a proud sponsor of the Beads of Courage program at the Kentucky Children’s Hospital. This program enables children to tell their story using colorful beads as meaningful symbols of courage that commemorate milestones they have achieved along their unique treatment path.
KERRINGTON'S HEART BOARD OF DIRECTORS
Christy Johnson, Executive Director
J. E. Stephen Horn, Treasurer
Maggie Chism, Secretary
Danielle Stinnett, Marketing Director
Britney Howard, Director / Race Director
Jenny Wells, Director
Brad Amos, Director
Rachel Brashear, Liaison
Kerrington, a beautiful baby girl, was born January 20th, 2009 to Sam and Christy Johnson. Kerrington was diagnosed moments after birth with having Tetrology of Fallot, a series of congenital heart defects and Absent Pulmonary Valve Syndrome, a rare heart defect. Kerrington was immediately transported to the Pediatric Intensive Care Unit at Kentucky Children’s Hospital , where she was released 6 days later with her prognosis and cause for her disease unknown. What was known was that Kerrington’s future would be filled with numerous heart surgeries; and the longer that we could wait, the greater her chance of survival.
Sam and Christy learned the cause at Kerrington’s follow-up appointment with the Cardiologist. Kerrington had tested positive for Di-George Syndrome, a genetic disorder with varying conditions including heart defects. The months that followed consisted of numerous appointments with various specialists. The first months of Kerrington’s life were confined to home because of her immune deficiency and the fear of her coming in contact with illnesses that would weaken her heart. In May, she was admitted to Kentucky Children’s Hospital for seven days for failure to thrive.
In September 2009 it was decided that it was in Kerrington’s best interest to move forward with her first major open heart surgery, which was performed on October 14, 2009. After a five hour surgery, Kerrington was taken to the Pediatric Intensive Care Unit where she stayed for seven days. She was discharged two days later, knowing that the valve that was used would possibly need to be replaced in three to five years.
Since Kerrington’s first surgery in 2009, she has had 2 additional pulmonary valve replacements. She has had to overcome numerous obstacles and has acquired numerous specialist. Kerrington is now a spunky 9 year old who loves her collection of Littlest Pet Shop (LPS), making YouTube video’s, and playing Roblox!
It is because of Sam and Christy’s journey that Kerrington’s Heart, Inc. was established. “Our goal is to raise awareness in the community that Congenital Heart Defects are the #1 birth defect while also supporting the families that are going through this difficult time in their lives”, stated Christy Johnson.
Kerrington’s Heart, Inc. is excited to serve the families of Kentucky.